Quality of life in children and adolescents with HIV
Pereira Rossell Hospital Centre. Montevideo, Uruguay, 2019- 2020
DOI:
https://doi.org/10.29193/RMU.39.1.7Keywords:
HIV, QUALITY OF LIFE, CHILD, ADOLESCENTAbstract
Introduction: HIV disease is a chronic illness. In Uruguay, there are no publications applying quality of life questionnaires in individuals younger than 18 years old with HIV.
Objectives: to learn about the quality of life in children and adolescents living with HIV who are seen at the Pereira Rossell Hospital Centre. To relate the quality of life of the surveyed population with their immune condition and viral load. To learn about school activity of children older than 5 years old and adolescents and its relation with viral load. To compare parents’ perception of their children´s quality of life and school activity with that of the children themselves.
Method: children and adolescents aged between 1 month and 18 years old with HIV were included in the study. PedsQL 4.0 questionnaire was applied. The results of children and adolescents were compared to the results of their parents and tutors and the viral load.
Results: the perception of quality of life in this population is good and does not vary across the different age groups. The perception of parents and tutors and that of children and adolescents was correlated, the same as the perception on school activity. No association was found between undetectable viral load and a good quality of life, neither with good school scores.
Conclusions: this disease does not seem to affect the daily life of this population according to the results of the questionnaire used.
References
2) Uruguay. Ministerio de Salud Pública. Dirección General de la Salud. Área programática ITS-VIH/Sida. Situación epidemiológica del VIH/SIDA en Uruguay. Montevideo: MSP, 2022. Disponible en: https://www.gub.uy/ministerio-salud-publica/sites/ministerio-salud-publica/files/documentos/publicaciones/MSP_SITUACION_EPIDEMIOLOGICA_VIH_SIDA_URUGUAY_2022.pdf. [Consulta: 29 julio 2022].
3) Organización Mundial de la Salud (OMS). Estrategia mundial del sector de la salud contra el VIH 2016-2021. Hacia el fin del SIDA; 2016. Ginebra: OMS, 2016. Disponible en: https://www.paho.org/es/documentos/estrategia-mundial-sector-salud-contra-vih-2016-2021-hacia-fin-sida-2016. [Consulta: 3 mayo 2022].
4) Fuster Ruiz de Apodaca M. Cuarto 90: calidad de vida de las personas con VIH. RMdS 2018; 6 (14):26-7. Disponible en: https://www.revistamultidisciplinardelsida.com/download/cuarto-90-calidad-de-vida-de-las-personas-con-vih/. [Consulta: 6 junio 2022].
5) Cabrera S, Arteta Z, Meré J, Cavalleri F. Calidad de vida relacionada a la salud en personas con VIH y factores asociados. Rev Méd Urug 2018; 34(1):7-19. Disponible en: https://revista.rmu.org.uy/index.php/rmu/article/view/37/32. [Consulta: 8 junio 2022].
6) Fernández G, Dallo M, Durán C, Caperchion F, Gutiérrez S, Dapueto J. Cuestionario sobre Calidad de Vida Pediátrica (PedsQL) versión 4.0: fase inicial de la adaptación transcultural para Uruguay. Arch Pediatr Urug 2010; 81(2):91-9.
7) Quian J, Gutiérrez S, González V, Bernadá E, Guimil S, Galeano V, et al. Conocer para intervenir. Panorama de niños y adolescentes en situación de orfandad a causa del SIDA en Uruguay. Montevideo: UNICEF, 2010.
8) González V, Quian J, Gutiérrez S. Infección por el virus de la inmunodeficiencia humana a través de la lactancia: un desafío diagnóstico para el pediatra. Perspectivas 2014:214-8.
9) Office of AIDS Research Advisory Council. Panel on Antiretroviral Therapy and Medical Management of Children Living with HIV. Guidelines for the Use of Antiretroviral Agents in Pediatric HIV Infection. Disponible en: https://clinicalinfo.hiv.gov/en/guidelines/pediatric-arv. [Consulta: 11 octubre 2022].
10) Lang T, Heylen E, Perumpil S, Shet A, Perumpil M, Steward W, et al. Quality of life and psychosocial well-being among children living with HIV at a care home in Southern India. Vulnerable Child Youth Stud 2014; 9(4):345-52. doi: 10.1080/17450128.2014.933942.
11) Bomba M, Nacinovich R, Oggiano S, Cassani M, Baushi L, Bertulli C, et al. Poor health-related quality of life and abnormal psychosocial adjustment in Italian children with perinatal HIV infection receiving highly active antiretroviral treatment. AIDS Care 2010; 22(7):858-65. doi: 10.1080/09540120903483018.
12) García Alonso D. Impacto de la infección por el virus de la inmunodeficiencia humana (VIH) en la calidad de vida infantil. Madrid: Universidad Autónoma de Madrid, 2010. Disponible en: https://repositorio.uam.es/handle/10486/4489. [Consulta: 6 julio 2022].
13) Trejos A, Mosquera M, Tuesca R. Niñez afectada con VIH/SIDA: calidad de vida, funcionalidad familiar y apoyo social en cinco ciudades colombianas. Salud Barranquilla 2009; 25(1):17-32. Disponible en: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-55522009000100003. [Consulta: 10 julio 2022].
14) Kook S, Varni J. Validation of the Korean version of the pediatric quality of life inventory 4.0 (PedsQL) generic core scales in school children and adolescents using the Rasch model. Health Qual Life Outcomes 2008; 6:41. doi: 10.1186/1477-7525-6-41.
15) Limbers C, Ripperger-Suhler J, Heffer R, Varni J. Patient-reported Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity. Value Health 2011; 14(4):521-30. doi: 10.1016/j.jval.2010.10.031.
16) Pinchak M, Matelzonas T, Da Rosa M , Boix A, Rodríguez M, Gutiérrez S. Calidad de vida del niño asmático y su cuidador en centros públicos y privados de Montevideo (2009 a 2010). Arch Pediatr Urug 2013; 84(1):10-7. Disponible en: http://www.scielo.edu.uy/scielo.php?script=sci_arttext&pid=S1688-12492013000100003&lng=es. [Consulta: 5 mayo 2022].
17) Roizen M, Figueroa C, Salvia L. Calidad de vida relacionada con la salud en niños con enfermedades crónicas: comparación de la visión de los niños, sus padres y sus médicos. Arch Argent Pediatr 2007; 105(4):305-13. Disponible en: https://www.sap.org.ar/docs/archivos/2007/arch07_4/v105n4a05.pdf. [Consulta: 8 mayo 2022].